u/lanebetta1999

My little pokemon friend helping me finish my cardigan 🩷
▲ 19 r/pokemonplushies+2 crossposts

My little pokemon friend helping me finish my cardigan 🩷

Little Munna I’ve had for years is keeping me company 💖

u/lanebetta1999 — 4 days ago
▲ 4 r/CMT

I have CMT, hEDS, and POTs and I’m getting worse.

I didn’t realize how bad I was getting into recently when I tried to climb my life stairs and it took three tries to step up onto one of them. It takes a lot to go up and downstairs, so I use elevators normally but it also dawned on me that I have trouble getting from point A to point B a lot more recently than I have before. As I get worse, I’ve noticed that I’ve stopped being able to feel hot and cold on my feet and now my hands. This is just a rant post about the fact that today I burned my hands because of friction. I was sweeping a lot today and because of the repetitive motion, I ripped my skin open between my thumbs and first finger and ended up with a blister and a burn because of sweeping. I didn’t feel it while it was being made, and I still barely feel it as is right now, even though they are covered with Band-Aids and very open and raw. I never realize that everything could cause me to just end up breaking down like I am every single day and feeling completely wiped out over just cleaning the house one time and even then it’s only just sweeping mostly. I take out the garbage at least once a week and just the walk from inside to outside is a lot to handle for me. I am, however, a full-time student and the friction of a pen rubbing against my finger can cause my finger skin to open up, and that has become an annoyance recently. The thin skin is a huge annoyance for me and the constant bruising, and having to explain that all I have to do is walk up a flight of stairs and my knees and feet will bruised just because of that is exhausting. Constantly feeling like I’m going to pass out just by bending over and people thinking that I’m faking because of that is also exhausting. And I’ll stop talking because I know things like this can also be exhausting to read, but I felt like I needed to ramp because I don’t feel the burns between my thumbs and fore fingers, but I know they’re there because I can see them and they hurt occasionally, but not to a point where they actually should hurt and my body should’ve told me to stop and put down the broom.

reddit.com
u/lanebetta1999 — 8 days ago
▲ 4 r/CharcotMarieTooth+1 crossposts

I didn’t realize how bad I was getting into recently when I tried to climb my life stairs and it took three tries to step up onto one of them. It takes a lot to go up and downstairs, so I use elevators normally but it also dawned on me that I have trouble getting from point A to point B a lot more recently than I have before. As I get worse, I’ve noticed that I’ve stopped being able to feel hot and cold on my feet and now my hands. This is just a rant post about the fact that today I burned my hands because of friction. I was sweeping a lot today and because of the repetitive motion, I ripped my skin open between my thumbs and first finger and ended up with a blister and a burn because of sweeping. I didn’t feel it while it was being made, and I still barely feel it as is right now, even though they are covered with Band-Aids and very open and raw. I never realize that everything could cause me to just end up breaking down like I am every single day and feeling completely wiped out over just cleaning the house one time and even then it’s only just sweeping mostly. I take out the garbage at least once a week and just the walk from inside to outside is a lot to handle for me. I am, however, a full-time student and the friction of a pen rubbing against my finger can cause my finger skin to open up, and that has become an annoyance recently. The thin skin is a huge annoyance for me and the constant bruising, and having to explain that all I have to do is walk up a flight of stairs and my knees and feet will bruised just because of that is exhausting. Constantly feeling like I’m going to pass out just by bending over and people thinking that I’m faking because of that is also exhausting. And I’ll stop talking because I know things like this can also be exhausting to read, but I felt like I needed to ramp because I don’t feel the burns between my thumbs and fore fingers, but I know they’re there because I can see them and they hurt occasionally, but not to a point where they actually should hurt and my body should’ve told me to stop and put down the broom.

reddit.com
u/lanebetta1999 — 8 days ago