Weekly weight gain amount for infant with large VSD ?
My daughter has a large VSD around 7mmx8mm in size and is struggling with her weight gain. For those of you who have babies with large VSDs, what did weekly weight gain look like for your babies before they had surgery to correct it?
Did your doctor have a weekly or monthly weight gain goal or expectation for your baby?
My daughter gained almost 2.5 pounds in her first month, but each month since then has been a constant fight to get her to barely gain weight. Month 2 she only gained 13oz, month 3 was 15oz, and these past three weeks only 8oz.
My daughter’s weight gain seems to be slowing way down now.
She’s around 15 weeks now and only 11lbs 4oz. We’ve had her on 10mg/ml of furosemide for the past 3 weeks, but it doesn’t really seem to help. We are fortifying her breastmilk with formula during the day and at night she is nursing. She just never seems super hungry and when she does eat, it’s only around 2oz at a time.
She also seems to have mild reflux sometimes and spits up a little bit during the day.
I guess I’m just looking to see what your guy’s experience was with your baby’s weight gain amount leading up to surgery