Had an appointment at Cleveland Clinic yesterday and left feeling pretty defeated. I explained that my bowel program keeps getting worse and is barely functioning at this point. I spend hours every day dealing with it, and between that and the AD symptoms, I just feel awful most of the time.
What’s frustrating is that it feels like every step forward just turns into more testing, more appointments, and more waiting without many real answers. I told them I’m reaching a point where I can’t keep living feeling this sick all the time. We talked about the possibility of a colostomy, which is something I never wanted to seriously consider, but it’s starting to feel like it may become necessary.
The main plan right now is more testing and a colonoscopy to try to figure out what’s happening. I know they’re trying to help, but mentally and physically this whole process is exhausting. Sometimes it feels like my life is controlled by my bladder and bowels instead of me, and that’s a hard thing to accept.