Bad experience with the children's hospital
I need to vent my frustration somewhere. My baby was born extremely premature, at 27 weeks and she's currently an outpatient at the children's hospital in Melbourne on their 'hens' program because she is fed through a nasogastric tube. She has developed a feeding aversion, which is why we rely on tube feeding her. She is now 5 months corrected and we have had no support from the hospital tube weaning her and supporting her with her feeding. I find it hard to believe such a reputable hospital can leave new parents (and babys) in the dark like that. I don't know if I'm missing something but I've raised it with them and have asked for support, I've gone to GPs who have sent them a letter and still nothing. Im feeling defeated and incredibly upset with their lack of compassion. I struggle to understand where their duty of care lies within this situation. I also asked if i could book in to help retape her tube which is coming loose and was told they don't do that, they only help if he tube has been pulled out, unless i wait in emergency and that can take a few hours.
Has anybody faced anything similar, and if so, how did you get support you needed?