u/draven_xylen

▲ 19 r/chd

How do I deal with this hard news

my little sister (11) has a heart condition that makes it so only one half of her heart pumps blood in and out (hyperplastic left heart syndrome) , which means she's on meds to make it beat slower and thin her blood, amongst other things, those are to increase her quality of life, and make sure her heart is good

she was ment to get a heart transplant at some point, as with her heart condition it's unlikely/impossible for her to live to be an adult, as the strain on her heart would be far far too much

currently and forever, her heart is too weak for a transplant, meaning she won't live past being a teenager (15-16 bets best case), so she will only get worse as the years goes on, and eventually her heart won't be ale to keep up

so how do I cope with the fact my little sister will die?

I know this is heavy, but I just really need advice, I don't know how to progress with this

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u/draven_xylen — 3 days ago