u/darkaydix

Recommend peritoneal oncologists/surgeons or other treatments

38/Stage4/MSS/KRAS/2.5yrs in.

I’m lucky that I live an hour from Duke so that’s where I’ve been going for 2.5 years. Currently I have a roughly 6cm x 5xcm retroperitoneal met. Dr Blazer was amazingly pragmatic, I was “inoperable” until this year but he felt that surgery wouldn’t be great at this time. Major midline cut, remove rectum and part of vaginal wall, and debulking. He doesn’t like HIPEC.

For now, I’m FOLFOX+Avastin+Balstilimab (still on the BBOpCo trial at Duke). I had some great results but no shrinkage on this last scan, so I’m getting ducks in a row. I would imagine FOLFIRI would be next *shudder* but still.

I’ve linked my oncologist up with Dr Maggie at Vanderbilt and am having him message Dr Morris in Australia (not that I’d travel that far, but just to chat about it).

I’m curious if there are other peritoneal champions you all could recommend that I reach out to for opinions. I’m kin of collecting them like Pokémon and doing a Choose Your Own Tumor Board lol.

Thanks!

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u/darkaydix — 3 days ago