Have you found that you have to explain the condition and your symptoms to any GPs you see?
For context I was diagnosed homozygous c282y with ferritin at 325 and TSAT at 72%, my last bloods in march were ferritin at 275 and i had another set a week later right before my first venesection at 301 and 61% (redone at the hospital because the GP didn't check my TSAT).
I have basically all of the early symptoms and have done for months, my Ferritin had reduced due to just how little I was eating for a while because of the loss of appetite. (I dropped 4kg in 2 months while not exercising due to fatigue and have never been capable of losing weight beforehand)
I went today for a follow up appointment after an ECG because of palpitations (which have become more often since the ECG 2 weeks ago) and I had to explain HH, that my Ferritin and TSAT are in fact a problem, I'm waiting for a liver ultrasound next week, I have symptoms from the HH and that HH can cause heart problems. All after he looked at me confused and said "why did you get an ECG" READ THE NOTES.
He also tried to say I'm fine because my Ferritin isn't in the 1000s so I shouldn't have symptoms anyway.
He's referred me for a 24hr Holter Monitor so I guess at least they're looking into the heart symptoms but bloody hell I didn't think I'd have to explain why my bloods are in fact not normal to a doctor!!