I was born with a bicuspid aortic valve, parachute mitral valve, and coarctation of the aortic valve. I'm 26 now.
In the last five years, things have deteriorated. Stenosis has become severe and in my last three ultrasounds, my EF is 30%. I'm also experiencing pain in my chest and shortness of breath when I exert myself, but weirdly, it's gotten better with the meds they gave me (propanolol, entresto, jardiance, lasix, metoprolol.) My heart failure specialist says I should get surgery to have the valve replaced.
The cherry on the cake is that I was literally just fired from my job and my insurance runs out this month. I'm wondering if this is as concerning as he's saying?
I know it's stupid to question these doctors. I'm being seen at Mt Sinai and they know what they're doing. I was just really hoping I wouldn't need surgery until I was in my 30s at least.