Results came in positive today as well as a mass in the brain mri days ago... got called finally today by my doctor. Could tell she was crying says they are setting me up with specialist at a different main hospital. Fml
This is the results of my mri no contrast.
Family history of VHL. My test for VHL is still in the lab... but seems I may have it by looking at my brain scan.
"Partially cystic partially solid lesion in the posterior fossa extending across midline but centered to the right. Cystic fluid intensity area measuring up to 4.6 cm transaxial centered to the right within the right cerebellum, potentially communicating with or extending from the fourth ventricle. There is a more solid-appearing component centered inferiorly with heterogeneous nodular tissue including involving the brainstem at the obex region, in total measuring up to approximately 2.8 cm transaxial. Cystic dilation of the obex region extending into the upper cervical spinal cord, suspected mild syrinx. There is some susceptibility signal associated with the nodular appearing tissue, suspected prominent blood vessels. Posterior fossa mass effect including mass effect on the fourth ventricle and the foramen magnum with crowding of the foramen magnum. There is also likely some T2 hyperintense edema signal around the nodular tissue. The lateral and third ventricles are not significantly enlarged.
No abnormal restricted diffusion to suggest acute ischemic infarct. Partially empty sella.
Right-sided sinus opacification greatest in the ethmoid air cells, fat intensity and potentially reflective of an old right medial orbital wall fracture defect.
IMPRESSION:
Solid and cystic mass lesion in the posterior fossa with cystic area measuring up to 4.6 cm transaxial and nodular tissue measuring approximately 2.8 cm transaxial. This involves the right cerebellum and brainstem, and there is posterior fossa mass effect including crowding of the foramen magnum and mass effect on the fourth ventricle. Consultation with a neurosurgeon and ultimately post contrast imaging to delineate the likely solid enhancing component is recommended.
Clinical communication pathway initiated."
How screwed am i?