290 Days Later
Follow up from a previous post;
https://www.reddit.com/r/AVMs/s/qyNoMH03kq
My best friend is completely back and rehabilitating faster than I ever thought possible.
Right side paralysis is so far transitioned into a minute weakness. Continued OT/PT has moved us into walking without a cane or walker consistently and doing just about everything she used to do before the surgery. Stairs, squats, you name it. She still hasn’t attempted ceramics quite yet, but I can tell the itch to dive back in is there.
Resection in the left temporal lobe has left word-finding a work in progress; however it gets better in huge waves just about every three weeks for some reason. I challenge her with debates and critical description exercises almost daily; she surprisingly hasn’t scolded me for it yet.
The hardest deficit to work through is vision honestly. Half of her right field in both eyes disappeared after the big surgery and we’ve just started working with a neuro-ophthalmologist to see what kind of coping mechanisms we can shoot for.
If some of you are deep in the post-surgery hellscape; please know that recovery and rehabilitation is possible. She was reading to our 6 year old last night, and it sounded perfect.
Don’t lose hope and keep at it.