Hey all,
I’ve been hospitalized with suspected MCAS and had the Mirena IUD placed 4/23/26. It’s been a struggle identifying triggers, but I’ve recently been able to identify that polyethylene and levonorgestrel have been triggers historically. Which are both components of the IUD, as I’ve only just learned.
My flare up symptoms and triggers have been accumulating and worsening since getting it, but I’m being encouraged to try and keep it in due to a family history of PCOS, fibroids, endometriosis and my own diagnosis of chronic pelvic pain. I’m on a small dose of both mirtazipine and LDN to help, but I’m still getting worse. About to get steroids and loratidine next, which have helped historically.
My question then is this: has anyone had reactions to the Mirena IUD that they were able to get under control without removing it?
I ask because fluctuating hormones (specifically high estrogen) is a trigger for me, which is why I got the IUD in the first place. I’ve failed the pills, shot, and copper IUD. This has been a last resort.
Any input (especially credible sources I can use when talking to the docs) on this topic appreciated!
TL;DR: seeking info on getting reactions to Mirena IUD under control without removal, currently on LDN, mirtazipine and about to add in steroids plus loratidine. Many thanks!