u/anonmustbe

▲ 8 r/mds

Dad diagnosed and not eligible for treatment. Question about what to expect

My dad is 84 and has been diagnosed with MDS about a year ago. He also has moderate to severe Alzheimers. He is in at home hospice, but is still mobile.

Because of the advanced Alzheimer's, he is not eligible for any treatment. He is extremely frail. He weighs about 95 pounds. Because of how frail he is, we did not do a bone marrow biopsy. However, in his blood, there are 4% blasts. He has pancytopenia. His platelets are at 38 and his wbc and rbc are also very low. He is positive for all the other markers like beta microglobulin, and the other labs.

The doctor gave my dad 3 months to live back in August. Here we are in March and he's still here! He definitely has the will to live.

My question is, at this stage what is the life expectancy and will the death be painful? The doctor thinks the MDS is evolving into AML. I do not want him to be in pain.

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u/anonmustbe — 22 days ago