u/__trashpanda

▲ 21 r/COPD

I just need a hug

I am 25 years old, my dad is 66 and has severe COPD. I don’t know what stage, he won’t tell me or my aunt, and doesn’t let me be involved or help with any of his medical stuff no matter how many times I try or offer, and I worry he doesn’t fully understand the medical stuff all of the time. He lives alone & independently in senior/ disabled housing. He uses nebulizers, inhalers, and an innogen to manage his COPD at home. He’s extremely stubborn and doesn’t want help with anything even when I offer to get him set up with extra services like visiting nurses and aides.
In November he was hospitalized for a severe exacerbation and was taken to a hospital and intubated with no ID. I hadn’t heard from him in a day so I texted him and that’s how the hospital was able to contact me to come in and ID him. It was the most stressful week of my life and honestly think it has traumatized me.
He was in the hospital again for a few days back in March for pneumonia, and is back again this week for another flare up. My life has become this endless cycle of worry about if he is okay and when is shit going to hit the fan again. I love him and care about him so much, text/call him everyday, try to get together every couple of weeks, but he won’t let me help him with his healthcare or give me the information I need to be able to help him or even know the full story. It sucks watching my dad who was once so strong & active be slowly taken over by this disease. I’m just so sad.

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u/__trashpanda — 6 days ago