It just keeps getting worse
My symptoms started about 3 years ago, but back then it was only my feet every other month. Now my hands flare up a couples times a week, mostly in the evening when I’m laying down. It’s incredibly painful and I usually have to wrap them with wet towels.
My feet don’t get as red anymore, but they get hot and the blood vessels hurt and look like they’re going to pop.
What I know so far:
My blood platelets are slightly elevated and has been so for almost six months now. Since they can’t find a reason for it I’m going to see a hematologist. However my doctor is hesitant if that’s what’s causing my symptoms because they’re only slightly elevated.
They took some autoimmune tests (don’t know which) and they came back negative.
My blood pressure is normal but in the low normal regions. My pulse seems to always be elevated.
I’ve been tiered since I was born. Apparently I slept a lot as a baby. And in my friend group I’m the “tiered one”.
Besides that:
- headaches quite often (like tension headaches).
- cold eczema on my legs in the winter that presents as red flares on my thighs that hurt and itches.
- overall dry skin.
I don’t know what to do anymore or what to even say to the doctors I see. Don’t know what symptoms are relevant to bring up.
Anyone with similar symptoms? Did you find an underlying cause to your erythromelalgia?