Does anyone else…?
Get headaches that feel more like debilitatingly uncomfortable “pressure” rather than typical “headaches?” For example, when my chiari (which thankfully has been determined to be mild) flares up, I get this intensity that starts at the base of my skull, and almost feels like my head wants nothing more than to push forward, away from the top of my neck. When I get this “heavy head” feeling, I also have awful physical symptoms. Like an internal shaking, my whole body just feels utterly fatigued, but if I try to sleep, I cannot. It’s just the worst. Before chiari, a neuro had said it was likely me experiencing some type of migraine, but that never seemed right because none of the symptoms, down to the way my head feels (almost like it’s in a vice, though I know they are not tension headaches) match true migraine. Also of note, when I get these symptoms, absolutely no medication (that I have ever tried anyway) touches it. No pain meds, no triptans, nothing works. They are usually triggered by a session of heavier than usual weight lifting, or from a deep sleep of some sort (like if I drank alcohol or smoked weed night prior, which I no longer do either).
Just wondering if anyone else has had these types of symptoms, or can relate at all? I know many of us experience this differently. Thanks!