Daughter suffering with FD
My 17 year old daughter has been diagnosed with FD and Eosinophilic Enteritis officially for about 4 years now. Chronic constipation was added to her diagnosis last fall. However, she has had stomach pain and frequent vomiting for closer to 8 years. A burning pain is her main complaint and what stops her from doing everyday activities. It's always worse in the mornings. She is on a lot of medicine for it, and it's getting to the point where she doesn't know what is helping and what isn't.
In early February, she was put on 10mg of Amitriptylin, which really seemed to help the buring pain. Then, about 3 weeks ago, they upped that dose to 20mg. Last week, I noticed behavior changes, including severe depression, irritability, and insomnia. She was taken off Amitriptylin completely on Thursday and prescribed 10mg of Nortriptyline instead, which she's afraid to take. There are already improvements in her mental health since removing the 20mg of Amitriptylin. Below is a list of what she takes for her stomach pain. I was wondering if someone else has tried anything different that worked for them.
50 mg hydroxyzine , 3x a day
20 mg Lexapro 1x a day
10 mg Montlukast 1x a day
10 mg Loratadine (Claritin) 1x a day
10 mg Buspirone 1x a day
Ginger pill
40 mg Esomeprozle, 2x a day
300mg Gabapentin, 3x a day
72mcg Lizness 1x a day
We have also tried but have stopped:
Budesonide
Cromolyn 4x
Dicyclomine
Omeprazole
Promethazine
Sulcrafate
Peppermint pill
Buspirone Hydrochloride
It's like one big circle. Anxiety and depression doesn't help the FD but the FD doesn't help the anxiety and depression. She has missed so much school this semester and will not be able to continue with the National Honor Society because she will end this semester with her first ever F. She also feels hopeless like her pain will never get better. I keep encouraging her to continue with her everyday activities so she has a distraction but she refuses. She is active as she's on the marching bands color guard team.
Anyway, sorry for the length of this post. I was hoping for advice from anyone else going through something similar. Thank you so much!
Edited to add: I definitely should have included tests shes had in my post. She's had 2 Upper scopes, a gastric emptying study, she did a barium swallow, stool sample tests, and lab work.
The result of the 2nd scope is what made them diagnose her with eosinophilic enteritis because they took a biopsy of her intestines
All other tests have been normal.