u/Vegetable-Band9245

Seen the results from my urine and serum organic acid testing had my rheumatologist and myself very confused… Quest couldn't make much of it, they seem like random levels are high… From what I read, all the levels that are higher associated with protein digestion. They're all high. Loose, isoleucine valine… There's about eight levels that are high in about four that are low. Besides this, she randomly checked my B1 and it is through the roof and I hadn't been supplementing… Also, I used to have very normal folic acid and B12 was on the high end, now my B12 is at about 600 and my folic acid is super high at about 2000 or something like that… My brain is so affected I could go days without sleeping and on the flipside. I could also go days without being able to wake up… The other day I woke up and I was aspirating all the fluid for my stomach was in my lungs. I thought I was gonna die… I'm losing consciousness. It's very scary. Neurologist have seen me cardiologist all sorts of specialist even psychiatric have seen me. No one knows what the heck is wrong with me… Recent EEG they had light shining in my face, in my eyes for 10 minutes and they told me, dude you must be very tired. You went unconscious three times within 10 minutes with the bright light shining in your face while I'm talking… I didn't remember it… While I was at church a couple weeks ago, I fell unconscious five times within about 30 minutes.I'm just rambling right now. I'll talk to text because I can't really text and coordinate… Please excuse this, and if you have any thing that I could look into, please help. Thank you.

It's been a six year battle, all my organs have been attacked lungs heart I'm in diastolic failure at 41 bedbound. There's times when I cannot see peoples faces I can't balance can't walk… My eyes burn like fire sometimes I can't lift up my arms or my legs my fingers get stuck in place. Sometimes my fingers will lift up by themselves… The emergency room knows me well and I think the consensus is I'm crazy… Even though I have plenty of diagnoses, there was just so much that was unexplained… Now, if I do have this, it will begin to make sense. I'm in bad shape right now, my diastolic is at 1:25, was diagnosed with diastolic heart failure, diastolic dysfunction. I heard all over no strength to lift up my arm to just reach for my medicine right now too much pain. Does this sound like neurosarcoidosis? My previous neurologist went for a clinical diagnosis of Neuro Sjogren's as my eyes burn like fire zero on the Schremmer's test and rheumatologist says mix connective tissue disease… All over the place, but so far this very high protein, brain damage and high serum ace one seem to show neurosarc is what it is. Also my Igg levels have been dropping like crazy, has me worried… My face has been blowing up. I don't know if that's because of my heart or what because it doesn't seem to be salt related… I wheeze on exhale and they've already said it's not pulmonary. Sometimes it feels like my breathing is gonna totally cease… My breathing, especially during sleeping is very weak, I've had several ER doctors say that I hyperventilate. Any direction help would be utmost appreciated my life singing by a thread right now.