A Pivotal Moment, But Stay Disciplined
I want to echo this. Regardless of differing opinions about the PFS Network, I believe they’re genuinely focused on patient wellbeing.
There is clearly a lot to look forward to as more researchers take an interest in exploring potential genetic predispositions and biomarkers of PFS. At the same time, many of them have responsibly stated that much of this is still experimental and in the theory phase.
People need to understand there is always risk when experimenting, especially with compounds or interventions that may impact androgen signaling, even if they seem benign. I don’t personally encourage experimentation given what we’ve seen. At the same time, I understand the deep level of desperation many of us feel to regain our health, and why some people choose to go down that path. I can tell you from experience that just when you think it can’t get worse, it can. If you do choose to experiment, it’s critical to approach it with extreme caution and a clear understanding of the risk. Too many people have gotten worse.
Despite what some may think, we’re in a pivotal moment. Awareness is growing, people are starting to take this seriously, and we have incredible scientists and researchers investigating this.
Please know there is real hope right now. But it’s also really important that we maintain the discipline to keep speaking out, supporting one another, and contributing to the research that’s moving this forward.
Stay strong, and above all, please stay safe.