u/UniqueMasterpiece962

Hi everybody, I’m 24yo F trying to wean down or potentially stop corticosteroids. I’ve been on corticosteroids since I was about five and recently dulara for about five years. I’ve developed adrenal insufficiency from the inhaled corticosteroids and my doctors think it’s a good idea to switch to dupixent does anyone have any thoughts on this? My asthma is not well maintained on Laura right now. It’s really hard to take a deep breath in and also I hear crackling and wheezing when I’m breathing also have a chronic cough with yellow phlegm. but I’m very weary of starting new medication’s because I don’t usually don’t react well to them, and also have severe anxiety. I’m allergic to a lot of things not dairy shellfish egg every kind of outdoor thing and animals. I’m just scared to pick since it’s gonna cause a lot of side effects and not helping to get off the steroid does anyone have any recommendations?

Hi everybody, I’m 24yo F trying to wean down or potentially stop corticosteroids. I’ve been on corticosteroids since I was about five and recently dulara for about five years. I’ve developed adrenal insufficiency from the inhaled corticosteroids and my doctors think it’s a good idea to switch to dupixent does anyone have any thoughts on this? My asthma is not well maintained on Laura right now. It’s really hard to take a deep breath in and also I hear crackling and wheezing when I’m breathing also have a chronic cough with yellow phlegm. but I’m very weary of starting new medication’s because I don’t usually don’t react well to them, and also have severe anxiety. I’m allergic to a lot of things not dairy shellfish egg every kind of outdoor thing and animals. I’m just scared to pick since it’s gonna cause a lot of side effects and not helping to get off the steroid does anyone have any recommendations?

Chronic cough with phlegm for 4years

So I’ve had chronic asthma since I was two years old. I’ve been on inhaled corticosteroids since I was five I’m 24 now my asthma has been pretty ok controlled. I’m on Dulara now and starting dupixent as well. Four years ago, I went to Arizona and caught some sort of illness, but was fine and was still drinking and having fun but when I got back I got this chronic cough that hasn’t gone away in four years with yellow phlegm. They ruled out pneumonia and bronchitis. I’ve also been tested for a bunch of viruses and desert viruses and nothing. Has anyone else experience this or do you think it’s asthma related? I’m not sure.

So I’ve had chronic asthma since I was two years old. I’ve been on inhaled corticosteroids since I was five I’m 24 now my asthma has been pretty ok controlled. I’m on Dulara now and starting dupixent as well. Four years ago, I went to Arizona and caught some sort of illness, but was fine and was still drinking and having fun but when I got back I got this chronic cough that hasn’t gone away in four years with yellow phlegm. They ruled out pneumonia and bronchitis. I’ve also been tested for a bunch of viruses and desert viruses and nothing. Has anyone else experience this or do you think it’s asthma related? I’m not sure.

So I’ve had chronic asthma since I was two years old. I’ve been on inhaled corticosteroids since I was five I’m 24 now my asthma has been pretty ok controlled. I’m on Dulara now and starting dupixent as well. Four years ago, I went to Arizona and caught some sort of illness, but was fine and was still drinking and having fun but when I got back I got this chronic cough that hasn’t gone away in four years with yellow phlegm. They ruled out pneumonia and bronchitis. I’ve also been tested for a bunch of viruses and desert viruses and nothing. Has anyone else experience this or do you think it’s asthma related? I’m not sure.

Hi everyone. I’m 24 and honestly feeling really lost and hoping maybe someone here has gone through something similar or has any insight.

Back in 2020, I got diagnosed with secondary adrenal insufficiency after having symptoms for a while and abnormal cortisol/ACTH testing. The weird part is that doctors could never really figure out why it happened.

Some background:

I’ve been on inhaled corticosteroids for asthma since I was around 5 years old.

I was also on Depo-Provera for about 4 years.

For years I felt awful and nobody could connect the dots. Eventually I stopped the Depo shot, and after that my cortisol and ACTH levels significantly improved. Month after month I actually started feeling better and thought maybe my body was recovering.

Then everything changed again around October of last year. I suddenly started developing intense anxiety and random panic attacks out of nowhere. By December, I started having symptoms again that felt very similar to my adrenal insufficiency symptoms from before — fatigue, weakness, nausea, headaches, body pain, feeling shaky/unwell, dizziness, etc.

I got retested and my cortisol and ACTH were both low again. My doctors are confused because they thought things were improving before. I have an MRI coming up within the next couple weeks to rule out a pituitary tumor or other issue.

I was also on hormonal birth control again (the patch and the pill on and off for about a year) until January. It’s now been around 4 months off of it and I still don’t feel better.

For asthma meds, I’ve been on Dulera for about 5 years at varying doses (50, 100, and 200) and before that I was on Flovent and multiple other steroid inhalers growing up. My doctors are now wondering if long-term corticosteroid exposure could be contributing and are talking about possibly starting Dupixent so I can gradually lower steroid use.

My endocrinologist also recently recommended that I stop working for now because the stress/anxiety and how physically unwell I’ve been feeling have gotten so bad. I also don’t tolerate the hydrocortisone very well. I had a lot of episodes in 2020 because I just don’t tolerate steroids well they prescribed me a .1 and .5 compounded hydrocortisone now and I can’t tell if it’s helping or not. i’ve been taking it for a couple days and then off of it for a couple days, my endocrinologist recommended I don’t do it and then they recommended. I do do it so I’m a little lost.

The symptoms have honestly become debilitating. Most days I can barely do anything. I either just sit around all day because I have no energy or I’m constantly dealing with pain, anxiety, weakness, headaches, nausea, weight loss or other symptoms. I feel like my life completely changed in my 20s and nobody can fully explain why.

At this point I just feel overwhelmed and confused. Has anyone experienced secondary adrenal insufficiency from inhaled steroids or hormonal birth control? Did anyone have recovery and then suddenly get worse again? I’d really appreciate hearing from anyone who’s dealt with something similar or can help in anyway because I feel like nobody can give me answers right now.

Hi everyone. I’m 24 and honestly feeling really lost and hoping maybe someone here has gone through something similar or has any insight.

Back in 2020, I got diagnosed with secondary adrenal insufficiency after having symptoms for a while and abnormal cortisol/ACTH testing. The weird part is that doctors could never really figure out why it happened.

Some background:

I’ve been on inhaled corticosteroids for asthma since I was around 5 years old.

I was also on Depo-Provera for about 4 years.

For years I felt awful and nobody could connect the dots. Eventually I stopped the Depo shot, and after that my cortisol and ACTH levels significantly improved. Month after month I actually started feeling better and thought maybe my body was recovering.

Then everything changed again around October of last year. I suddenly started developing intense anxiety and random panic attacks out of nowhere. By December, I started having symptoms again that felt very similar to my adrenal insufficiency symptoms from before — fatigue, weakness, nausea, headaches, body pain, feeling shaky/unwell, dizziness, etc.

I got retested and my cortisol and ACTH were both low again. My doctors are confused because they thought things were improving before. I have an MRI coming up within the next couple weeks to rule out a pituitary tumor or other issue.

I was also on hormonal birth control again (the patch and the pill on and off for about a year) until January. It’s now been around 4 months off of it and I still don’t feel better.

For asthma meds, I’ve been on Dulera for about 5 years at varying doses (50, 100, and 200) and before that I was on Flovent and multiple other steroid inhalers growing up. My doctors are now wondering if long-term corticosteroid exposure could be contributing and are talking about possibly starting Dupixent so I can gradually lower steroid use.

My endocrinologist also recently recommended that I stop working for now because the stress/anxiety and how physically unwell I’ve been feeling have gotten so bad. I also don’t tolerate the hydrocortisone very well. I had a lot of episodes in 2020 because I just don’t tolerate steroids well they prescribed me a .1 and .5 compounded hydrocortisone now and I can’t tell if it’s helping or not. i’ve been taking it for a couple days and then off of it for a couple days, my endocrinologist recommended I don’t do it and then they recommended. I do do it so I’m a little lost.

The symptoms have honestly become debilitating. Most days I can barely do anything. I either just sit around all day because I have no energy or I’m constantly dealing with pain, anxiety, weakness, headaches, nausea, or other symptoms. I feel like my life completely changed in my 20s and nobody can fully explain why.

At this point I just feel overwhelmed and confused. Has anyone experienced secondary adrenal insufficiency from inhaled steroids or hormonal birth control? Did anyone have recovery and then suddenly get worse again? I’d really appreciate hearing from anyone who’s dealt with something similar or can help in anyway because I feel like nobody can give me answers right now.