u/UnableWerewolf8130

Image 1 — Diagnosis mystery
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▲ 21 r/smallfiberneuropathy+3 crossposts

Diagnosis mystery

Lab results:

CRP AND ESR ELEVATED

CBC ABNORMAL VALUES: MCH; 33, RBC: 4.4, RDW-CV: 11

B12: 1598

Vitamin d: 23

Thyroid: 79

I have been getting heavy legs, veins bulging in heat and with exercise… to the point where they’re painful and I cannot walk… erythromelegia is an initial diagnosis that I don’t wholeheartedly believe. I’ve struggled with an eating disorder for 3-4 years, although I’m at a healthy weight now… the heat really bothers me, redness, swelling, inability to walk without veins bulging and hurting… I look like a freaky bodybuilder… it’s ruined my life, I can’t go outside over 60… my hands buzz and so do my feet in the heat, tingling… I’m desperate for answers…

I’ve been struggling for the better part of 4 years. Vascular surgery said no reflux or arterial

I have a referral in 2 weeks for neurology…

I feel as though I have underlying deficiencies….

u/UnableWerewolf8130 — 2 days ago

Pain and questions

Hello everyone, I’ve searched far and wide for any advice or similar experiences…

I’m an active 24M, lift weights 6x a week, walk 15-20k steps.

Recently I’ve had excessive blood pooling in my legs within 5 minutes of standing. I can’t walk in the heat anymore because of how painful it gets. The swelling comes on with standing, lifting, or anything that engages a forceful breath hold.

I am headed to vascular surgery this week and was just curious if anyone had this blood pooling and how they fixed it?

Thank you!

u/UnableWerewolf8130 — 1 month ago