Diagnosis
I have done loads of research, and I based on everything I've seen; I could definitely have Hypermobile EDS or at least HSD. The internet says that since there is no genetic test for hEDS, and a diagnosis is purely clinical, it is important I find someone who is experienced with hEDS. I mean, your regular joe doctor probably won't know what doughy or velvety skin feels like, right? Unfortunately, there isn't anyone near me on the Ehlers Danlos Society website that isn't a physical therapist or a geneticist.
So, is it really that important to find someone that has special knowledge in hEDS? And how on earth would one do that? Could a physical therapist or geneticist diagnose?
Also, how hard was it for your doctor to believe you? Is bringing a thorough joint and medical history necessary so they take you seriously and not try to write it off as something else?
Anything else I should know?
Thanks in advance!