u/Top_Faithlessness869

Ice pack test - currently undiagnosed.
▲ 6 r/MyastheniaGravis+1 crossposts

Ice pack test - currently undiagnosed.

Good morning all, hope everyone is doing ok!

I am a 35 year old female who has spent the last couple of years being bounced around specialists before getting a diagnosis of FND. I feel some of my symptoms may be FND but not everything fits. I have recently discovered myasthenia gravis. I have checked previous tests I have had done and as far as I can see MG has never been tested for. I have substantial weakness that started in my legs and now affects everywhere, including my face/mouth/swallow. I have swallowing issues that are getting progressively worse and has had input from the swallow clinic meaning I need to tuck my chin to my chest to force the swallow reflex. I’ve just had my eye test done and been referred to them due to double vision that is worse when tired/at night. I also have drooping in my eyelid. There is so may more symptoms I am dealing with but I believe they may be more leaning towards FND.

I have booked a private blood test for the AChR antibodies (I have an ophthalmology appointment in June who can carry out the rest of the tests if needed).

I read about the ice pack test so was curious to try it. I will add the images below showing before and after applying an ice pack for 2-3 minutes. Does this look/sound likely to be suspicious of MG please? I had read of a lot of people being diagnosed with FND before being confirmed as being MG. Thank you for taking the time to read this :)

u/Top_Faithlessness869 — 2 days ago