u/Tiny-Umpire-8636

Allergies from hell??

Anyone else having allergies that have come straight out of the pits of hell? I went to urgent care and got diagnosed with allergic rhinitis and pleurisy. This tree pollen and dust/dander that’s floating around is killing me! I was advised to take Zyrtec everyday and 3 ibuprofen’s and 2 Tylenols every 8 hours for the next two days. Was negative for influenza A & B, and COVID.

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u/Tiny-Umpire-8636 — 19 hours ago

Pre-Surgery Kit

Just as the title says, I received my pre-surgery kit in the mail from the hospital. They are on top of things! My surgery isn’t until June! I got all the directions for how and when to do the wipes and drinks. I have an appointment with anesthesia next week and then a pre op appointment with a nurse the week after. Then my surgery is in June. In July I have my 6 week post op appointment with my surgeon. I am so ready for this surgery. Especially because everyone has been so nice and supportive. Has anyone had to drink these endure pre surgery drinks? Do you think it helped you feel better when waking up after surgery?

u/Tiny-Umpire-8636 — 4 days ago

Rheumatologist nightmare… kind of diagnosed?!

I had my first ever rheumatologist appointment yesterday and I could have been my own rheumatologist. He did NO blood tests, no imagining, no nothing. He grabbed the skin on my arms and chest and pulled. Rubbed my hands (yes… rubbed) and that was it. I showed him all the pictures/videos of everything hypermobile that I can do and his student was more interested in them than he was. He told me, “light exercise, wear braces, and you’ll be alright.” I already do light exercise because I have POTS and I wear knee braces and a back brace because my knee caps move out of place when I walk and my lower back hurts so bad when I walk too long. And I wear a compression band over my hips because they pop out when I walk. He told me that he could not diagnose me with hEDS because clinically he just can’t do it. I woke up today, had a new office visit summary and at the assessment part of the document… This is what it said word for word:

“Hypermobile joint syndrome of multiple sites

Hypermobile joints multiple sites with hypermobile joint Ehlers-Danlos spectrum disorder.”

I’m so confused!!!

I told my primary care physician and she apologized for how badly the appointment was and I told her to just send me to a geneticist. And she sent a referral, so I’m waiting on a call from them. I am so confused and irritated. But I know that going to a geneticist is a good thing and I’m happy to be going to one. Has anyone had a similar experience to me?

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u/Tiny-Umpire-8636 — 10 days ago