I just found out that at the end of February a 4.6cm lesion was found on my right kidney when I went for a CT to follow up on a 9mm lesion I had since July of last year…. This 4.6cm is a new one in addition to the 1cm lesion that has stayed the same since November (it went up by 1mm between July & November but stopped growing then) my urologist made it seem like he was referring me to complex surgery to get a biopsy (I am on blood thinners due to unknown cause of thousands of micro pulmonary emboli 6 years ago & I have a very complex medical history due to surviving ewings sarcoma and the fallout from the aggressive treatment to get me through it) earlier today but when I went to schedule the referral appointment I found out this isn’t a complex surgery doc but a uro-oncologist….
It was at that point that I looked at my clinical notes and found out about the second new/bigger lesion…. Well said uro-oncologist can’t even get me in to go over my imaging until August…. I am on the waitlist…. But I am very worried…. I did ask my primary doctor to get a referral to uro-oncology closer to home (this doctor is in downtown Chicago and I am about 2.5-3 hours from there right now)…. Everything I have read is saying that it is more likely to be cancerous…. I have already seen that it is most likely to be approached by full removal of the kidney and testing after surgery to diagnose…. But I am hoping others who have been through this might be able to tell me what else to expect so I can prepare for anything that I MIGHT be facing on both ends…. If it comes back cancerous and if it doesn’t…
Any insight/recommended steps advice is greatly appreciated at this time while I am processing and trying to get things lined up to handle this the best way possible…
Thanks in advance…
TLDR: very complex medical history, doctor didn’t disclose new 4.6cm lesion, referred to uro-oncology, long wait times, worried about waiting, on wait list, need advice on best steps to take in preparation/treatment while waiting to hear back