I’m based in Paris and I was recently diagnosed with RP. I would like to know your recommendations regarding vitamins/supplements to take, based on your experience and how stable the disease is
- Omega 3 ? Which type ?
- Lutein ? Which type ?
- NAC? If yes, which type?
- Multivitamins
My ophthalmologist told me to take Vitamin A 50,000 IU, but I read that it might not be good/safe. Can anyone confirm?
People in Germany, does this supplement help stabilize peripheral vision?
I couldn’t find it in France or the UK.
Any feedback or experiences
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The flashes are mainly what made me discover RP
Are these floaters or something else? It happens to me when I’m stressed, in the dark, or when I sneeze… basically in several situations and when I’m in a dark place and a light suddenly turns on, or the other way around, they appear for me
Is there a solution for this?
It appears all over my field of vision (top, bottom, right, etc.), sometimes as circles, sometimes as lines… and it lasts a maximum of 1 minute.
Kind of like in the picture⬇️
Supplements!
What are the best supplements you’ve taken that really helped slow down the progression?
Everyone, please share what you’re using (omega-3, lutein, vitamin D, etc.) and a picture if possible
I’ll try to find them in Paris
As for NAC, can we take it without a prescription, or is it necessary to consult a doctor?!
What are the best supplements you’ve taken that really helped slow down the progression?
Everyone, please share what you’re using (omega-3, lutein, vitamin D, etc.) and a picture if possible
I’ll try to find them in Paris
As for NAC, can we take it without a prescription, or is it necessary to consult a doctor?
People who have astigmatism, what do you usually do?
I have very mild astigmatism in both eyes: -0.25
Do you do any exercises?
Thank you.
I saw my ophthalmologist today about bilateral macular edema. He told me there is some improvement with a decrease in the left eye, and that I should continue Diamox.
But the problem is the dualkopt drops. I checked and saw that they lower intraocular pressure, but I don’t have high eye pressure, so I don’t understand why I need them.
Has anyone ever used these drops for treating edema? Do they cause any side effects related to glaucoma?
And with Diamox, what do you take to avoid any problems with the liver or kidneys?
Hello everyone 🙏
If anyone with RP (Retinitis Pigmentosa) is taking any treatment, therapy, or supplements and has noticed even a small improvement in vision, please share your experience.
Your story can give hope and real information to many others who are still searching for answers. Every update matters. 🙏✨