Elevated PEM (1 week in)
Context: Had long covid 2.5 years, PEM issues only really became big issue in past 6 months. Have managed some part time work recently (just), but luckily it’s term time so I have two weeks off to start LDN.
I started LDN at 0.5ml last Saturday, noticable effects from the get go, decided to drop to 0.25 by 3 days in, as I was a bit too out of it. Had my usual cautious workout on Wednesday as I was feeling ok by then, and had the worst PEM I’ve ever had the past few days. Symptoms improving but very very slowly.
I’m assuming the fact such a low dose has had instant effects is a promising sign, but I’m desperate for any helpful or reassuring feedback right now. I’ve been cooped up on my own in the house most of the time, and it’s hard to stay positive.