▲ 23 r/healthcare
Ryu's mom just wrote the most important op-ed in biotech. Read it.
Just read this and couldn't put it down. A mother who watched her brothers Angelo and Antonio die from DMD at 20 and 22 is now watching her son Ryu fight the same disease while an approved gene therapy exists and the FDA argues about paperwork. She's not asking for a miracle, she's asking for access to something that's already been approved and is already working. Families are flying to Doha, communities are raising millions in Turkey and Ukraine, and this mom is writing op-eds on Fox News begging for her son's life. This is what the endpoint debate actually costs. Not basis points on a spreadsheet. Ryu.
https://www.foxnews.com/opinion/son-terminal-disease-fda-delays-failing-families-like-mine
u/Sure_Gap2948 — 3 days ago