Are you also having the same feelings and aches?
Hi
I’m sorry if this has been asked before, and also sorry if my English isn’t good it is not my first language.
I’m reading through every single post here since I’ve been diagnosed last year, and get literally lost into every type of symptoms, case etc. without finding something similar to mine, and need answers from this community.
Long story (not so)short: I (F35) was diagnosed one year ago last April. Was put on beta blockers and Neo Mercazole (carbimazole) immediately.
I’m now in the “normal range” since months, still on 5mg carbimazole per day and no beta blocker anymore, but even though my labs shows I’m back to normal, I do not feel “normal” at all. If anything I feel worse.
I have a plethora of symptoms and every doctor just tells me that it’s normal or that there’s nothing to worry about.
For example some of them include, on a daily basis; anxiety, depression, loss of energy, weight gain, tired all the time, hair loss, panic attack, brain fog, digestive issues (extreme bloating and starts to notice a gluten intolerance: gastrointestinal booking made for next month)… all that I think is normal, from what the doctors told me.
I also developed ocd from checking my pulse 1000 times per day in absolute fear of having another “thyroid storm” where my heart was at 220bpm and the ambulance had to come. I’m in h24 constant absolute terror of this happening again. It was traumatising, felt my body betrayed me.
But there is one issue that is making me feel worse than everything else.
The back pain. It’s absolutely awful. Its constant. From the moment I wake up, to when I lay to sleep, the whole day, my back is, from the top of the neck to the butt completely painful, everywhere, and very painful. Something like feeling trapped in a very old person’s body. Whether I lay on the floor, couch, chair, bed. It’s there. I’m walking every day in nature, stretching and doing some Thai chi to relax but it’s still there.
Doctor just told me… he also has back pain. Told me it’s normal.
Another doctor told me it’s the effect of my med (didn’t see back pain in the side effect list?) and finally another doctor told me it’s from my hyperthyroidism, although I’ve been stabilised since months. It’s like still losing weight after treatment and regulated thyroid: not so normal ?
I feel I’m the only one to think something is wrong, a chronic and painful back pain cannot be normal.
I’ve done weeks at the physio, one to two times per week and still it change nothing. I’ve stopped because I felt I has made them loose time.
Have you also had this ? How do you feel after being stabilised?
I feel so alone in this. Am I ever gonna be normal again ? Is it ever going to feel like a normal life?
I’m so sad. So desperate. No one understands.
I feel I am now a (stabilized) depressed and fat monster in constant pain and anxiety.
I use to have so much energy, I use to be positive, fit and hot, wild and free. I had so many plans and dreams, now my only dream is to be healthy again. I’m so sad.
Please be kind to me. I’m really hoping to have answers from this community.