u/Stunning_Feeling4538

🔥 Hot ▲ 53 r/lichensclerosus

Was anyone else told “just use the cream” and then… left to figure everything else out?

 Hi everyone,

I’m Kathy, Executive Director at the Lichen Sclerosus Support Network (LSSN).

I spend a lot of time listening to what people in this community are actually struggling with, and a few things come up over and over:

  • “Is this LS… or menopause?”
  • “Why does sex still hurt even when I’m ‘treating correctly’?”
  • “Why do I get different answers from every doctor?”
  • “Am I doing this right… or making it worse?”

And honestly… most people are left trying to piece together answers from Reddit threads, Google, and short appointments that don’t go deep enough.

So we built something to fix that.

This May (May 11–15), we’re hosting the 6th Annual Wholistic Healing Summit.
Theme: The Year of You: Rewrite Your Story

What makes this different:

👉 You’re not just getting general info
We bring together 12+ specialists (GYNs, derms, pelvic PTs, sexual health experts) who actually treat LS

👉 We go into the questions people are usually too afraid to ask
Menopause vs LS
Hormones + tissue changes
Pain with intimacy
Bladder + pelvic symptoms
What’s “normal” vs not

👉 You can attend from home, privately
No referrals, no travel, no waiting months for answers

👉 The Live Pass is free
You can watch all general sessions during the summit week

There’s also an All-Access option with the small-group Q&As (where people ask very specific, real-life questions and get direct answers), but even just the free sessions will give you a much clearer starting point.

If you’ve been stuck in the “am I doing this right?” loop, this is probably the most structured, medically grounded place to start.

You can check it out here:
👉 lssupportnetwork.org/whs

I’m happy to answer questions about sessions, speakers, or whether this would actually be helpful for your situation.

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u/Stunning_Feeling4538 — 22 hours ago