Help or advice please.
Hi, since March 16th I’ve been living in hell. Numerous trips to a&e, GP appointments and living through the worst thing ive ever experienced. At the end of March on my fourth trip to a&e the doctor there told me they suspected it’s a hemiplegic migraine.
I feel like I’m having a stroke every day almost. I’ve got permanent damage to my right eye. That hasn’t recovered, I wear glasses now. I didn’t before. I’ve lost myself, I barely recognise who I am anymore and I’m finding it incredibly hard mentally. Before this started I thought myself of quite intelligent (I’m a writer) and now I’ve become someone who can’t even comprehend creating something with my current brain.
It’s ruining my life. Work triggers is, walking triggers it, doing chores triggers it, going to the gym triggers it… basically being alive triggers it.
They’ve given me a neurology appointment… it’s August 25th. This has been happened every day since March 16th. So I don’t have a formal diagnosis and I’ve also had zero tests done. Not one. They just keep offering pain killers and sending me off back home even though my last attack occurred without a headache before, during or after and it was awful. I thought I was about to die. I could feel the artery or veins in my neck trying to escape out the side and my throat was so swollen I could barely swallow water.
I don’t know what to do, or how to manage this. I’ve tried desperately to get my neurology appointment brought forward but they’ve told me they can’t see me any sooner than that. I’m haemorrhaging money, I’ve got no life, I can’t work, my flats a disaster and my fitness has never been worse as I can barely get off the sofa without falling down due to the weakness in my right leg, loss of balance, dizziness etc..
So if anyone can give me some advice I’d really appreciate it as I’ve asked the hospital and my gp repeatedly for some kind of management plan or preventative medication but they’ve not offered me any help and I can’t get the preventative meds without formal diagnosis and that can’t happen until August 25th when I finally see a neurologist.
Thank you (a very scared and stressed woman who is at breaking point)