Vent/advice
Heyyyyy everyone hope you are all having an amazing day/ night depending on your country. I just want somewhere to talk to people that understand what I’m going through/ been through. I was diagnosed with my tumour when I was 17 and I’m now 21. I had an mri 6 weeks ago today and something caught me off guard. He asked if I had a follow up booked. Strange but I thought nothing of it till last week. I got a text to check the online portal which my letters are kept in and sure enough a neuroSurgery appointment was there. This brought back my feelings that I felt before and now that I’m old enough to understand what is happening, live alone and now have access to my own NHS app I look at my old neuro letters and omg I wish I hadn’t. It states that neuro oncology believes that my tumour is cancer but my surgeon has disregarded all of that and decided that I don’t need treatment. It’s payed off so far but my question is is today the day that I get the news that my tumour needs treatment. For background this man is almost impossible to get an appointment with so I’m like why have I just been given one without asking. Also I have redacted letters in my NHS app so is this the professionals talking about me but not wanting me to worry? Like I’m worried. I’m so scared and alone and I don’t know where to turn to. Words of comfort needed xx have a lovely day xx