u/SleepAmazing4367

I often get flare-ups in my legs lately. They feel extremely hot. Like they were burning.

I can't remember if I had this kind of feeling with only fibromyalgia..

One example:

I was at the zoo with one of my friends and their kids on saturday. It was mostly sitting at the playground really. For about 4 hours.

I had the usual muscle aches I always have and a small headache but nothing major.

I was the whole friday lying in bed so I was able to go on Saturday.

Sunday felt quite normal.

Monday was awful. I was feeling more and more exhausted as the day went on. At noone I felt dizzy and light headed. It was like I really had to lay down somewhere.

And as soon as I was lying on the sofa I fell a sleep for over 2h. In the evening the leg burning starts. Then I felt like I got a cold.

Tuesday I felt like I was getting the flue. I had a really mild fever and I knew I had to take it slow but I couldn't. I had to take my kids from school and bring them to their Ballett classes.

After that I was so exhausted, everything hurts at ones. My legs were on fire and got worse at evening when I finally come to rest. Still mild fever.

Now is Wednesday and I not able to do a single thing.

I tried do make breakfast but my arms felt too weak to even hold a knife.

I can go to the toilet but have to lay down afterwards.

Do the muscles hurt under MEcfs? Or is my fibro getting worse? Is there something I can do to release the pain?

How long do your crashes last?

I didn't know I had ME/CFS since this year and was always told to push through so I did. But everything was getting worse and worse since last I wasn't able to do anything anymore. This was last november.

Now I tried to not overdo it anymore. Watch out for pacing but sometimes I still get crashes. I was an active person before and not being able to do anything is making me depressed.

I was finally starting to loose weight and loose 20 kilos last year. But know I can't do any exercising or I will end up in a crash.

I'm only mild I think, but I don't move that much as before. I walk like 40 minutes a day, to take my kids from school.

But I'm not able to cook or clean or do much more. I mostly lay on the sofa.

But with this, my weight is getting up again. I tried to figure out how much kcal I can eat without moving much and it's only like 1300kcal which is like nothing!

I cope with snacks and I feel like if I'm not able to eat chocolate any other day I get more depressed than I already am.

How do you guys manage this?

I don't want to lose all the effort it took to lose weight.

I never bought a ticket with real money but everyone there where new gachas I was able to get 1-5 for free. I can't remember where I got them from, weekly log in? Codes?

But ever since the cinematic event I wasn't able to get even one ticket.

Did you experience the same?