u/Shakymoondance

I am 9 days post op, and I am doing mostly better. I learned that the big complications of the surgery were due to the hospitals negligence (already working on getting council, that hospital was not a good one).

I had an emergency surgery and am in a bag, but to be honest after the first 3 days everything just feels normal. I am now at home, and only a few things stand out. It is still challenging to get out of bed, and if something is on the floor then I can not grab it. I didn't realize how much I used my core strength for everything. If the bag is not positioned right then it causes discomfort, but emptying the bag has 0 challenge to it. I have not changed the bag yet because the hospital nurses were changing it while changing my wound dressings, so I can give another update once I do change it myself.

For the first time since my first episode in 2019 I am excited to say I no longer hurt if I need to poop, no longer the extreme need to run to the bathroom to get rid of extreme stomach pain, and for the foreseeable future I shouldn't have episodes anymore either. Even with the pain from complications, this is the best I have felt in years.

In 6-8 weeks my wounds should be almost completely healed, and I will be consulting the surgeon for the reversal and going along the journey to normal life again.

TL;DR - Get the surgery when it is optional, but don't be afraid if you have to do the emergency surgery like I did. The bag is not bad, it's not scary once it's done. I got home yesterday and it's weird due to limited mobility. The surgery pain is reduced significantly already, the only pain I have is due to the complications that caused the emergency surgery.

Please let me know if clarification is needed, communication is not a strong point for me

Hello (26m) after several years and 3 flairups I just had the emergency surgery. I'm just gonna talk about my current flair up that caused the surgery.

So I've been suffering from this flairups since the end of December and beginning of the year. My car was broken down all of January and February so I wasnt really able to go get it checked out. At the end of February I went to an Urgent Care and got misdiagnosed with a UTI, went home and didn't get better felt like kidney stone explosions in my bladder and urethra. 24th of February I went to the ER and was confirmed with diverticulitis, they gave me meds and sent me home for 2 weeks on these meds. I learned in that course that I am allergic to metroNIDAZOLE and Ciprofloxacin. At the end of March I am worst off than when I started and went back to the hospital and Admitted April 13. I was confirmed with diverticulitis and a contained perforated abscess 4cm in between my bladder and sigmoid colon. After a few days the abscess showed signs of shrinking and I was sent home on Antibiotics. I made it a week before the pain was too strong again, worse than when I went in the first time.

My current visit started April 23rd, and the Dr decided to try and drain the abscess that had grown to 6cm. First day was fine, little pain and the stress was being drained. That next night the drain got pulled. It was no longer draining and I felt a pop while I peed into the provided urinal and got a picture of the puss I peed out. Drs didn't see anything as issues, didn't care about the picture. Next week my drain sight specifically was getting worst, swelling and hurting. By Thursday the 30th I was no longer able to get out of bed due to the extreme pain, and my lower right abdomen was swollen intensely. More CT scans and the Drs said no emergency surgery (I was begging for it by this point) carry on to the next day, my surgeon came in and did a really quick and painful procedure because he figured out that the drain had slipped and I had puss pouring into my abdomen. Low and behold I feel better for a solid day.

Warning this is gross:

I then learned on day two that when my stomach would make noise I would feel a painful sensation from my new open incision and it would sound like a wet fart. It happened a lot, it hurt a lot, but once the gas buildup was done I believe that was it, I also sadly believed that it was draining old puss still.

I was wrong. The nurse came in that morning and I told them again what was happening and they instantly got worried. I found out that I was pooping through the incision.

From Saturday to Sunday I proceeded to get frequent cleanings of the drain and a CT scan in each day, Sunday (yesterday) getting a CT scan of drinking the contrast, and having a contrast enema. A different surgeon came in and what I have been begging for over a week, if we can do the surgery Sunday or Monday, I chose yesterday.

Now officially 1 day out from surgery and the pain is intense, I do have a bag, but it is still nothing compared to what I've been feeling and dealing with all this time