u/Sensitive_Amoeba4

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▲ 10 r/bunions

My bunion is getting worse and it’s making my fourth toe curve and everything else go out of alignment. I’m 27. I am uncomfortable every step I take. This foot is worse than my right. I’m scared of the surgery but I think I need it to correct some serious alignment issues and tendon stuff

u/Sensitive_Amoeba4 — 9 days ago

Did anyone get diagnosed with myofascial pain syndrome but have a hard time accepting the diagnoses? I am 27, been having pain for about a year and a half that has gradually gotten worse, been to ortho, rheumatology, neurology, hematology for swollen neck lymph nodes and no one could pinpoint what was wrong after imaging and blood work. Rheumatology was fairly certain it’s myofascial pain syndrome but I believe something deeper is going on. I truly truly do. I was working as a dental hygienist and I thought the job caused all of this and when I stopped it would go away but it never did. Idk what the next step is since no one believes me and when I brought this up with my primary care she told me I need a psychiatrist and prescribed me lexapro. I was so upset. My upper left trap and neck muscles are chronically tight and crackly along with my upper neck in general. It’s so stiff and I hear cripitus every single time I move. It’s started to affect my shoulder blade and my left arm and even my left hip. It’s like the original spot is just wreaking havoc. Idk what’s wrong with me but I’m desperate for answers and the root cause!!! Not bandaids

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u/Sensitive_Amoeba4 — 9 days ago

How do you deal with the mood swings that come with chronic pain and not taking it out on the people you love?
I’ve become so irritable and on edge. The constant discomfort just wears me down, and before I even realize it, I’m snapping at my family or my partner over small things. And then I feel horrible after, because they don’t deserve that at all and none of this is their fault. I also have found that I’ve become self absorbed because all I think about is how much pain I’m in and don’t know what’s wrong with me and i find myself CONSTANTLY having to bring it up to my fiancé and mom. I feel like such a bother but I think I just feel alone and like everyone’s life is moving on and mines not. It’s like I’m stuck between being in pain all the time and then feeling guilty for how I react to it. I don’t want to be this version of myself, but it’s hard to stay patient and calm when your body never lets you relax. I don’t want to push people away. I want to be nice. It’s so hard sometimes. I feel so bad for them

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u/Sensitive_Amoeba4 — 12 days ago
▲ 2 r/TMJ

Anyone else when they stick their tongue way out its uneven and goes to one side. It’s freaking me out and driving me insane

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u/Sensitive_Amoeba4 — 14 days ago

Hi everyone, I’m 26F and I’ve been dealing with a lot of unexplained symptoms over the past year and could really use some perspective.

It started with chronic pain and tightness, mostly on my left side (upper back/shoulder/neck), but over time it’s spread more down that side. Now my left hip and ankle also bother me, and when I walk it sometimes feels like that side is “trying to keep up” or not moving as smoothly. I don’t have foot drop or anything obvious like that, but there’s constant tightness, discomfort, and a general sense of imbalance.

Other symptoms over the past year:

Persistent muscle tightness and stiffness (especially left side) my left side just seems overall weaker and insanely tighter than the other side from my spine to my foot. My entire back and neck feel painful and tight too.

Chronic pain that seems muscular but hard to pinpoint

Feeling weaker than I used to overall

Tingling in my arms

I’ve had a pretty thorough workup so far:

Bloodwork (normal)

MRI of cervical and thoracic spine (these were a year ago) (most recent mri was brain in February, no concerning findings per doctors)

EMG of my upper left side (normal)

Seen by a neurologist who was not concerned based on exam and testing.

What’s really worrying me now:

About a month ago, I started having widespread muscle twitching (fasciculations) that are not limited to one area. They are:

All over my body (legs, arms, back, etc.) (most common in my feet calves legs thighs though)

Much more noticeable when I’m lying down or at rest

Sometimes constant and very hard to ignore

I don’t notice clear muscle atrophy, and I can still use my muscles, but the twitching being new and happening everywhere is odd to me. I’ve never experienced this before. Every now and then I feel Iike my limbs wanna like jerk too.

I know this is an ALS-focused group, and I’m not trying to overstep. I’m just scared and trying to understand what’s going on.

My questions:

Are widespread fasciculations (especially worse at rest) something people have experienced without it being ALS?

Does a normal EMG + normal neuro exam + clean MRI of brain earlier this year point away from something like ALS?

Has anyone had a similar combination of chronic pain, tightness, and new widespread twitching that ended up being something else?

I really appreciate anyone who takes the time to read or respond. This has been mentally exhausting and I’m just trying to get some clarity. Thank you

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u/Sensitive_Amoeba4 — 17 days ago