Hello guys !
I’ve been dealing with muscle twitching and ALS fear for around 3 years now. The twitching started in my legs and eventually spread all over my body, including calves, arms, back, feet, and even my tongue.
Over time I became hyperfocused on every small asymmetry or dent in my muscles and started constantly checking for atrophy. Recently I’ve been especially worried about my right foot/ankle area and whether it looks like muscle wasting.
What has been done so far:
- Multiple neurological evaluations
- Multiple EMG/ENMG tests over the years
- Leg ENMG in December 2023
- Whole-body EMG testing
- EMG of arms/hands and legs
- Tongue EMG
- MRI studies
- Clinical strength testing by neurologists
Latest EMG was normal, and all EMGs/ENMGs have been normal with no evidence of motor neuron disease according to neurologists.
I do have widespread fasciculations daily and sometimes internal vibrations/tremor feelings, fatigue, brain fog, foot discomfort, and health anxiety. Neurologist suggested benign fasciculation syndrome (BFS).
Despite this, I still obsess over whether certain areas look abnormal, especially my foot and ankle. I’m posting photos because I keep worrying about possible atrophy there and wanted outside opinions from people experienced with BFS/ALS anxiety.
Has anyone else gone through this cycle of constantly checking body parts even after clean EMGs?