u/Remarkable_Front5573

Im 4 months post-AIDP diagnosis and have been having increased discomfort and patchy numbness in my fingers and feet. I had an EMG today (didn't originally while in hospital) and they believe its CIDP based upon the markers. Im waiting to hear next steps from my neurologist, but will likely get another treatment to see if it helps symptoms.

Im curious if anyone else with CIDP made it months after original AIDP diagnosis before they got changed. If you made it that long, do you still need treatment every 3 weeks?

I was diagnosed with GBS four months ago, and during the testing - they gave me full MRI and lumbar puncture. Brain MRI was done first and notified mild cerebellar tonssilar ectopia. Lumbar puncture seemed to go fine - confirmed elevated proteins. A few days later - noticed some mild head issues upon standing, but didn't think much of it and went home.

For the next several weeks, I woke up with headaches and sometimes it would occur during the day. I then started having brain fog, neausea and overall eye/ear issues. Tinnitus in both ears at night. I was getting motion sickness while watching videos. It felt like my brain was being overwhelmed by my vision in general.

This has persisted off and on for months now. Im wondering if its possibly related to my lumbar puncture, potentially resulting in a (spinal?) CSF leak and possibly worsening my borderline chiari.

Any thoughts/similar experiences?