u/RemarkableCrows

Woohoo I did it.. days 5-15 were the worst, literal hell, I wanted to crawl out of my skin. I was truly taking it hour by hour, sometimes minute by minute. But every day I would look at the calendar and feel so proud of myself that I'd put another day between myself and the last time I took it.

I'm feeling a lot better but still having insomnia/wired all the time, never feel sleepy or tired. But I am strong and resilient. I believe time will keep healing me. Overall it's been an empowering experience to face something difficult and push through it.

My EBV EA is 59.40, with also abnormally high KFLC and IgG (IgM was in range). My doctor said this is only evidence that I had EBV sometime in the past. I've been symptomatic for 19 months (MECFS/PEM, persistent flu feeling following covid in 2024 - I went from being a high level athlete to mostly bedbound).

Is EBV EA really not indicative of current immune activity and only represents past infection? My doctor thinks my symptoms are due to mental health, and I need to improve my attitude and get out and exercise, etc. I would love to exercise, but every time I've tried I get very sick. I think I'm being gaslit but idk. I've lost 19 months of my life to illness, I am eager to find some solution!

I am mostly homebound due to a chronic illness (mecfs-type long covid, which I've had for 19 months). Prior to covid I had been a very healthy athlete/fitness professional for over 20 years (I'm 43). Currently, I only leave the house for medical appointments, and while at home I am mostly in bed. All exertion of any type (physical, mental, social/emotional and sensory) causes my illness to flare up, sometimes to the point where I am essentially physically paralyzed, unable to talk, see, process any information, etc - like a vegetable almost. It's obviously a very difficult condition to deal with. If I rest a TON my symptoms start to go into remission, but as soon as I overexert myself (could be small things like going up and down stairs, having a conversation, doing laundry, washing my hair, etc), my symptoms flare for days to weeks.

I did go for my mammogram about 6 weeks ago and, using CAD/AI, they found a cluster of microcalcifcations that they labeled bi-rads 4b. I scheduled a mammogram-guided core needle biopsy for 3 weeks later but I have had to cancel due to being in a flare. But I am starting to feel somewhat better and thinking about scheduling for some time over the summer.

I tried searching to see if anyone had been in a similar position, having to postpone a biopsy due to health reasons but I didn't come up with much. Just wondering if anyone has gone through similar or I'm really alone. My mecfs/long covid is my main concern right now as it is so serious and debilitating. I'm not sure if I had a positive finding that I would even be able to tolerate any treatments. I leave the house like once a month and it takes me an entire month to recover before I can do it again.

In a way, I can't even put in the emotional effort to be scared of a finding on my mammogram, and so a lot of what I read in this sub or similar I can't relate to. In a way, I wish I had the capacity to be anxious that they found something and urged me to have a biopsy. I don't want anyone to take that the wrong way because I know that kind of anxiety is horrible, but that almost feels like a luxury to me now. I can't let my mind go there. I will try to get the biopsy when I can but for now I've had to postpone it more or less indefinitely.