37 M with Osteoporosis
Hi everyone, sharing my case here - hopefully it helps someone out there feel less lonely with this disease. Or helps me find other people in a similar situation.
I'm a 37 Male - After a few months of going to the gym and dieting, I did a Dexa scan to see if I was gaining muscle & losing fat... turned out surprise! I have osteoporosis 🤣 (-3.0 Z-Score in Spine). Needless to say - this was a shock. Never felt healthier in my life (just lost 20 pounds of fat) and been exercising religiously for 6 months. Haven't had any fractures in the last 12 years.
My doctor was initially skeptical, made me do another Dexa, which confirmed my Osteoporosis. She then made me do a ton of tests, virtually all of them came back normal, incl. Total T, Free T, PTH, Cortisol, HIV, TSH, Calcium in blood, Calcium in Urine, Vit D, Electrophoresis, Metabolic panel, blood count, auto-immune diseases, lupus, CTX, etc... My Celiac came back negative too.. but i'll need to do it again as i haven't been eating much gluten lately.
Only two things came back not good: high P1NP and high SHGB.
=> Interestingly, my P1NP is high (188) but my CTX is normal (204) 🤯. May be I had an undiagnosed painless fracture?
=> My Total T is very high (borderline too high) but my Free T is on the lower side of normal. That's explained by high SGHB. But unclear if this is due to my strict diet in deficit.
Still waiting on results for Estradiol.
Right now, this whole thing is still a bit of a mystery - I am still working out 5 days a week, lifting heavy incl. deadlifts etc. I'm getting a little bit paranoid - everytime i have some minor pain or discomfort, I wonder if it's a fracture or something. It's been tough from a mental stress perspective.
My PCP doctor said once we get the last results, she'll recommend me to a specialist endoctrinologist to investigate more as she doesn't see any obvious cause.
Good luck to everyone out there! Will keep you posted as/if I learn more.