Secondary Results- yes or no
My son was born with VACTERL impacting his kidney, urinary system, and anus. We’ve decided to meet with genetic counselor and discuss genetic testing to determine if there’s anything else or if this is something he should consider for if/when he decides to have kids later in life. (He is 6 years old right now). I thought it’s better to know more so we can always get him the best help possible, however when they brought up the option to get secondary results my first thought was ‘yes, no doubt’. I would want to know just in case there’s anything we could possibly prevent or make lifestyle changes to. But now I don’t know… what if we learn he’s at a high risk for some type of cancer? I don’t think I could handle the anxiety if it’s something completely out of our control. But on the other hand I’d be so upset if we found something out down the road that I COULD have helped prevent. I just don’t know… please help. My heart hurts just thinking about it all. Are secondary findings few and far between?