im exhausted.
as far back as i can even remember, i’ve always struggled. i’ve never been able to exist as a normal person. as a child, i could hardly run as i have flat feet, and the pain would become overbearing extremely easily. i was mocked relentlessly for being “out of shape” and overweight.
my issues have only gotten worse over the years, and started becoming extremely prevalent within the last 5/6 years. the last few months have been especially bad. new dislocations, subluxations, worsening muscular and joint pain, dizzy spells, eye issues, headaches, you name it.
i went to my GP a few years back for general joint pain in my legs, nothing. went again a year later as it had progressed, blood tests, clean. they put in an referral for rheumatology, and my rheumatologist said she’d put in referrals for various other specialists, said my joints were hypermobile, and that i just have to get my weight down and do more exercise. it couldn’t possibly be hEDS/HSD! the beighton scale doesn’t lie! its just a weight issue.
i haven’t heard from any of the other specialists (aside from OT, who did basically nothing,) and my next rheumatology appointment had to be moved.
i’m going back to my GP soon to see if theres anything that can be done… but i’m losing hope. every corner seems like another dead end. how do people get doctors to listen to their calls for help?? it seems like i’m just going to be dismissed for the rest of eternity by systems that are failing chronically ill patients who’re struggling just to exist.