Hi everyone,
Hoping that someone has some thoughts about my current situation.
I am 31 with two children. I had a miscarriage that led to a D&C in January. I called my OB last month because I still hadn't gotten my cycle back. She put me on 10 days of progesterone to try to get my body to have a period (I still didn't end up having any bleeding after this.) She then wanted me to get an ultrasound to check for scar tissue from the surgery.
There was no scar tissue, but they found a 5 cm cyst on my right ovary. Wording on the results is "multilocular cystic lesion in the right ovary, measuring 5.0cm in size, mild vasculature is demonstrated. GYN referral and further evaluation with contrast-enhanced pelvic MRI is recommended."
My OB calls me and says she's not worried, she's sure it's a hormonal cyst that will rupture and orders labs and an MRI to confirm. She was expecting my hormonal labs to be elevated due to the large cyst and no period, but they were all normal. However, my AFP lab was elevated to 40.
My MRI results were "There may be an enhancing solid component that measures up to 1.8cm. There is concern for a multiloculated right ovarian cystic lesion with a solid component. An ovarian cysytic neoplasmi is not excluded"
lBased on this result and the elevated AFP, she referred me to OB Oncology. Oncology wanted me to repeat the AFP, which came back 10 points higher (2 weeks after first blood draw) and is now in the 50s on the labs.
I had the apt with oncology on Friday. When the Dr. walks in he says to my husband and me "Well what do you know? What did ChatGPT tell you?" I am also undressed, sitting in an exam gown since the nurse told me he will want to physically examine me. Obviously we were taken aback by his demeanor. When he goes to examine me, he asks "which ovary is it?" And then says luckily he can feel the size of the ovary since I am "pretty thin." He then tells me to get dressed and we can go talk in his office.
In the office, he says he just talked to my OB and he thinks she can handle the surgery herself to remove the cyst and send it to pathology. But based off the scans he thinks it's "nothing" but "I could be wrong!" When I asked about my elevated AFP, he says it's typical in the 100s for his patients and not to worry about it. I asked him could it be just slightly elevated because it was just caught very early? And he said no it would be higher. I asked what were other reasons it could be elevated then. He says "I'm not sure, I would probably have to Google it."
I wish I were joking about this. Thankfully my husband was there or people would surely think I was making this interaction up in my head for a bad movie plot. His bedside manner aside, we are concerned that he did not give my case any weight and just completely dismissed our concerns simply because my AFP wasn't extremely high. I know the only way to confirm anything is through pathology so I guess all we can do is wait for the surgery of that. But also we don't want to wait too long and his lack of urgency on this and if it is "anything" risk having it spread.
What I can't get out of my head is that my scans were flagged twice, by two different doctors, plus my OB who was very concerned. Plus an unexplained elevated lab, no cycle, bloating. I know and obviously hope and pray that it's "nothing" but there's just this unsettling feeling that he didn't take much care on this.
Does anyone have any thoughts or experience with anything like this?
Thank you so much for reading. Hugs to you all!