Head Chatter
Finally officially diagnosed, so now will get the right treatments and tests, I hope, since it’s lcSSc with dysmotility all my labs looked great! Except for that positive Ana, centromere B antibodies, centromere pattern, high titers 1:1280, Raynauds, reflux, complaints about GI and recurring Pseudo Obstructions and low C4….. besides that…. But inflammation markers, nutrients, appearance, etc. all looked “healthy “ and was dismissed as old age, maybe bad food, go home nothing is showing up on scan or labs to explain the pain, maybe it’s gas….
Anyway that’s not the topic just a small vent…. For the last few years it’s been constant focus of what’s wrong, what is it, constant challenge to my diagnosis(I was right though) looking at symptoms and if not lcSSc what else….anyway now it’s diagnosed the head is constantly focused on every symptom, workouts are constant focus on how I’m feeling and all I want to talk about, I try and ask others how they are and if asked just say I’m good rather than dump. I want sympathy and attention and acknowledgment but at the same time I am doing pretty good acting mostly “normal” just the chatter in the head is relentless!
Mostly need to get this out in the open and talk about it, not to further focus on it but to try and reset so I can go back to thinking about whatever I used to think about… not sure what I thought about before….
I am grateful my business is busy and demands my attention as that helps but probably not exactly the most calming distraction.
Anyway….. looking forward to hearing if and how anyone else goes through this or went through it.