They want to schedule my third TURBT, Cystograpy in two years.
Diagnosed in OCT ‘24, (Low grade non invasive) TURBT done in Nov 24, another done in June ‘25 followed by 6 weeks of BCG. April ‘26, Cystography in office, 4-5 new ones and one removed and biopsied which came back with the same previous diagnosis. His suggestion was try a Chemo instillation or wait for future growth and have another removal. I chose the former but after two weeks heard back
“Unfortunately, the Zusduri/Mitomycin bladder instillation is new and not yet available and our Cancer center. This is in the works but may take months to set up”
The doctor recommends “get another cystoscopy in the operating room where he can remove the bladder tumors and use Chemotherapeutic agent in the bladder”
I know it’s low grade , but I’m thinking another hospital/doctor/opinion will tell me a different story? Am I getting carried away? If I go to the “TOP Cancer Hospital in NYC” will they have the magic pill?
Thanks