Unknown Causes: Fluctuating CBC, Metabolic and Hormone Levels
I’m a 38 year old woman, mostly white European and a 1/4 native American. I’m 5’2” and my weight fluctuates between 104-110 depending on whether I’m weight listing or dealing with SIBO. I eat very healthy and generally follow a low Fodmap diet due to the SIBO/IMO.
My test results the last 3 years have been all over the place, and I’m dealing with symptoms that are affecting my quality of life. I’m at my wits end and bc I’ve had to change health insurance so often, it never gets solved and I have to start all over again.
Please if anyone can suggest what might be causing this, I would greatly appreciate it! 🙏🏼
*** Happy to add test results in the comments***
SYMPTOMS THE LAST 3ISH YEARS
- Night sweats, every night where I soak through multiple clothes and sheets. Since 2022. Worse since 2024.
- Hair loss, falling out in clumps in the shower since 2019. Worse since 2022.
- Extreme fatigue, or insomnia. Worse since 2024
- Brain fog. Worse since 2024
CRRENT MEDICATION:
Synthroid 127mcg daily (since 2014-15)
Liothyronine 2.5mcg daily (since 2024)
Spironolactone 50mg daily (since 2022)
Minoxidil 2.5mg daily (since 2024)
Adderall 7.5mg as needed, generally 4-5 per week (decreasing my dosage from 20mg daily since 2007)
CURRENT DIAGNOSES & TEST RESULTS:
2026
- April - Free thyroxine is back to normal
- April - Abnormally low white blood cell count
- April - Abnormally high mean cell hemoglobin
- March - Got injured (fractured vertibrae) and noticed that while I was taking my prescribed Meloxicam and Pregabalin my high sweats disappeared. I’m now off the medication and the night sweats have returned
- Feb - Abnormally high high Free Thyroxine
2025
- Sept - Abnormally high mean cell hemoglobin
- Sept - Abnormally low ALK PHOS serum levels
- Sept - High chloride serum levels
- Sept - Ferritin in the normal range
- July - Diagnosed with SIBO and IMO. Experienced abdominal pain, brain fog, gastro issues and lost weight (weighed 103 at my lightest)
- July - Normal TSH
- April - Abnormally high mean cell hemoglobin
- Feb - Tested for high TSH
2024
- Aug - Got a disturbing Prolactin 20.8 ng/mL result that says I’m “post menopausal?!” Doctor said not to worry
- July - Normal testosterone levels
- July - Ferritin in the normal range
- July - High chloride serum levels
- Feb - Abnormally low testosterone levels
- Feb - Abnormally High mean corpuscular volume
- Feb - High mean corpuscular hemoglobin
- Feb - Diagnosed with hereditary Hemochromatosis with 217ng/mL and underwent regular weekly phlebotomies for 4ish months. I’m now in maintenance and give blood 1x a year.
2023
- I don’t have access to these test results anymore
2022
- Springtime - Diagnosed with high testosterone, was put on Spironolactone. The doctor didn’t seem to care enough to investigate why the numbers were high but it was significant. Just shrugged his shoulders and gave me meds.
- Springtime - Noticed even more hair falling out, clumps in the shower
- Feb - In a car accident, suffered fractured bones and a minor TBI.
- Jan - High mean corpuscular hemoglobin
2019
- Noticed lots of hair was falling out
2014-2025
- Diagnosed with Hypothyroidism.