What the hell is going on?!?!
I had my MSLT done at the beginning of the month & got my results back (didn’t enter REM but had 7.2 sleep latency = hypersomnia). Before this I was on Clomipramine, and would lose muscle control when I yawned/ laughed. I stopped taking Clomipramine and it went away for a bit, but then after my MSLT it came back full force (fully folding at the hip bc of laughter). They did the genetic test for Narcolepsy (HLA DQ for narcolepsy), and I just got my results back as negative. I’m so confused 😭.
I have had my fair share of doctors not believing anything I say or blaming it on anxiety, and I’m so worried that because now im losing muscle control but it’s NOT narcolepsy, I’m going to have to fight again to figure it out. If I wasnt starting college this fall I wouldn’t be nearly as stressed about this. I already have a 504 so I can rope in some accommodations for the sleep stuff with that. And I don’t have any energy to keep advocating that something is wrong with me if no doctors will listen. Idk if any of you have had similar experiences and how you went about them? I don’t know what to do, I’m so done
I have a follow up with my doctor at the end of the month so there is a medical process going on for the hypersomnia bit, I was just really banking on having a positive test and having all my diagnostic problems with this solved.
* NOT ASKING FOR A DIAGNOSIS just so so confused & tired