IgA nephropathy
Hey everyone,
I’m 32 years old and was officially diagnosed yesterday with mild early-stage IgA nephropathy after a kidney biopsy.
Everything started on November 11, 2025, after a throat infection/virus. Not long after, I noticed blood in my urine for the first time and had been dealing with fatigue for months. Seeing blood in the toilet honestly scared me, so I went to the ER. After urine tests and more follow-up, I was referred to a nephrologist.
I had my kidney biopsy in March 2026, and yesterday I finally got the results: benign/early IgA nephropathy. My next follow-up is in 3 months with blood work, urine tests, and blood pressure monitoring.
To be honest, I’m still trying to process all of this. I’m not the kind of person who feels sorry for himself, but this hit me pretty hard. Right now I’m mostly trying to learn, understand what life looks like with this condition, and connect with people who actually know what this feels like.
If anyone has advice, personal experiences, or things you wish you knew early on, I’d really appreciate hearing from you.