u/OkAppearance8132

Hello. I was diagnosed with Necrotizing Sarcoidosis in August of 2023. I'm hoping to find someone (ANYONE) that shares the diagnosis.

My pulmonologist is amazing, but because NSG is so rare, I would like to find someone to compare notes with about treatment.

I'm in a few FB sarcoid groups, but I can't get any of them to let me post. I've tried several times, but nothing I submit is ever accepted.

Thank you in advance!