u/Ok-Orange-4177

My 10 month old has hypotonia, torticollis and feeding issues. He’s stayed sick regardless of whatever steroids we give him for the past six months with a “respiratory illness.” I put it in quotes bc I don’t know what’s going on. Pediatrician doesn’t wanna seem to do anything further any of it. Now, as of this past week, he has a double ear infection and they gave him an oral antibiotic. I guess because of his feeding issues he’s vomiting up the antibiotic. Now today he has a fever and he’s had two HUGE projectile vomit episodes. For the past week and a half, I’m not sure if it’s because he’s sick or what he’s had a significant decrease in feeds. He’s had ongoing weight issues. I talked to the Pediatrician’s nurse this morning (before I found out he threw up) and she said the Nurse Practitioner said “they’ll drop weight when they’re sick sometimes.” But what am I gonna do if he never stays well? What am I gonna do because he keeps vomiting up his medication? Just we let him decrease in feeds till he’s dehydrated and in an emergent situation?! His normal is 38oz a day and today he’s had 6oz. 🤷🏼‍♀️

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u/Ok-Orange-4177 — 13 days ago