Feeling broken
My dad was diagnosed with bulbar onset ALS in January 2026, his slur started around June/July 2025. Since hearing of his diagnosis I just can't help but feel helpless. He is dealing with it in a much better and more positive way than I am. Everytime I see him I feel as though I'm saying goodbye and everytime I'm not around him I feel a sense of panic and guilt that time is passing and I'm not there. He's in his early 60's and just one year ago was full of life and was completely healthy. Watching him deteriorate like this is tough and as a male in his early 30's I feel as though I need to be strong for him and the family but I can't stop the tears from pouring whenever I'm left to my own thoughts.
We have a daughter and are expecting our next child soon, she loves him and he of course loves her, but it kills me to know that she won't remember him as she grows up. Sorry for the long post, I've been following all of your stories for some time, the way in which you are all dealing with this battle is inspiring, whether it's you or a family member that is suffering from this horrible disease. I wish you all the best