How to cope with the fact my hEDS chronic pain doesnt have a cure
Hi, never posted on reddit before. Im a 22f that just got confirmation of having hEDS after suspecting basically ever since i can remember.
Ive dislocated my knee horribly, shoulders, ankles, you name it ive done it. I also have horrendous chronic pain at the base of my neck/ top of spine and lower back pain to the extent of winding me just when I stand.
I went into the doctor looking for an official diagnosis but also some way to help, and all i got was ways to manage but theres no “cures”. Ive gotten X-Rays and blood work as well and theres nothing they can pin point is wrong or causing my pain.
How did everyone come to terms with the fact the pain doesn’t go away.. its making me so freaking sad that this is just how it has to be. Like ive been living with it for years so nothing has changed, but having it confirmed theres nothing but management to be done was heart breaking. Ive already been dealing with a bunch of mental health stuff and this feels like the cherry on top lol.
How do I accept that this is just how it is?
TLDR: how do i mentally cope with my hEDS chronic pain that has no cure